Carter Trace Brotherton is our son, who recently was diagnosed with a rare disorder called I-Cell Disease or ML II. He was born on Halloween 2006 and is our first and only child. We created this site to share Carter with the world. He is our little hero and continues to amaze us with this strength and ability to touch us everyday! …. Now, I know you all might think of course, he’s your son, you’re going to be touched by him, but you will soon learn that it’s not just us, he has this ability to touch all that meet and get to know him and this is why we want you to know him as well.
Please view Carter’s special journal which we have developed to inform you of the steps that he will take as he goes through the long, grueling process of battling against his unfortunate disorder. These steps will be tough and I think you will find to be very emotional at times, but I need to share with you his progress, and at times, his digress. I hope this will help other families and parents that might have to tackle what we are about to… I will be here for you all and welcome your comments, questions, ideas and prayers.
Also as I mentioned above, we want to educate you on what Carter has been diagnosed with. Most of you that will view this site are our family, friends, and then possibly their friends and family. We have appreciated everyone’s interest on his condition and the desire to help him and us, so HERE you can learn more about his condition as well as ways you can help out. Because of the rare diagnosis, we feel that the more we reach out to bring awareness to his condition and others like his, then we have accomplished our goal.
Oh yes, it’s important to have a goal when you are dealing with a situation like this! My wife and I have made it our priority to bring as much awareness to Carter’s condition and to children’s similar to his, so we will also have occasional events that we will host or co-host to get the word out. As with all disorders, we rely on those organizations that have paved the way for others like Carter and in this case it’s the National MPS Society. We’ve learned quickly the MPS Society is instrumental in the advocacy, awareness, education, and healing for hundreds of thousands of children and family that have had to deal with situations like Carters. As time goes on, I will add additional links and information for you all to investigate in hopes that you all will learn a little more about these very serious cell diseases that have effected many children but with little funding.