Meet Carter

1st of all some new photos of Carter…

We are so excited around here for the upcoming week to begin. To start with many of you know that we had been approached by Deni and my previous employers and my current client Premier Ventures about hosting their annual golf tourney in honor of Carter. This Monday is that very golf tourney we are expecting around 150-175 people at the event and the tourney sold out quicker then it ever has. All proceeds are going to go to National MPS Society and Hinote’s Heroes and should be a lot of fun. But it doesn’t stop there. We were approached by DKMS Americas (www.dkmsamericas.org) about how many of you had contacted them about becoming Bone Marrow donors, we were so happy to hear that our son had inspired so many people to come forward to do something that could in turn hopefully save some one’s life. We are so happy to announce that we will be having two on-site Bone Marrow Drives in Carter’s honor, one at the tourney and the other at Children’s Hospital in Aurora. If any of you would like to come out and donate either to become a marrow donor or give a monetary donation that would be awesome. The dates are:

1. Monday, June 23rd 7am-8:30am @ heather ridge country club in Aurora

2. Tuesday, June 24th 11am -3pm @ Children’s Hospital in Aurora visit www.dkmsamericas.org to learn more about this event.

Some fun new photos of Carter…

Well our little Boo, sure does have the flair for the dramatic. And unfortunately Deni and I are not really into dramas. It’s no secret that anyone who goes through what he has had to endure you are going to encounter issues with eating habits, food taste and oral consumption in genera. lately Carter has had a hard time eating his solids to the point that chocking can cause him to look a little like the kid from the exorcist with pea soup. Not a fun thing for him or for us. Thursday evening the problem because worse when in the process of chocking he aspirated some of his food into his lungs and scared the bijeezus out of us. We had to call 911 and take him to the Children’s… Mom was so calm and she rode with Carter all the way to the hospital while I followed in the car. He was pretty much okay by the time they got him there, but it gave us all one hell of a scare. I don’t care to see him do this ever again! They decided to keep him over night to make sure he didn’t have any signs of food in his chest which can cause a form of pneumonia. He ended up staying into Friday afternoon, by the time he was good to go home.

The good news is that we had just been talking to the Docs on Wednesday about this problem and they were looking into a swallow study, which we all can agree that he needs again. The first one was given right before his BMT, and wasn’t really conclusive. This dramatic event has sped up the process of getting this done and we now have a swallow study on June 25th. This is much earlier then if we hadn’t had this problem.

Any way Carter has been doing good since. He is down to just formula for now, but we have increased the calorie intake and he has been slammin’ them down!

Happy Father’s Day to all you papas out their. I hope you all got a chance to do what you wanted to do and enjoyed your new ties or cool sweaters you got.

Destiny made this great video of Carter playing his favorite game… Simon Sez. Hands up! Clap! Clap! Clap!