Meet Carter

Over the past month we have been really excited about Carter’s good health and progress since his BMT procedure last year.  He has been putting on weight, with his most recent being a whopping 16.74 lbs!  He seems to be going through a bit of a growth spurt, we know this by the fact that we are finally getting rid of all the 3-6 month old clothes and even the 9-12 month ones are getting a little tight!  He has been learning to keep us real busy especially Deni as she has to obey to his needs as he moves from play station to play station each morning. He still spends on average of 2 x a week at the hospital, but he has been getting rave reviews from the Doctors about his progress. The tough part of all this is that we don’t know what to expect from him, will his condition worsen, get better, stay the same, do all of the above?  We and the Docs are on the same page as that each day is a new day and unfortunately or fortunately that is how we have to look at the situation.  For now each day the past month has been really good!  Carter has a big week on deck at the hospital.  He has an all day visit tomorrow to prep him for another all day on Thursday. He is going under for a slew of tests including new ear tubes (3rd pair in less then a year), The 1 year BM test, A CT Scan and a full dental survey. Since he had his front two teeth removed in December he has had 6 more teeth come in very slowly that up to last week, we thought they would be removing, but we had some good news last week at a dental visit and it looks like (Fingers crossed) that they won’t have to remove the teeth. With his condition, we have learned that he is a “one-of-a-kind” child and the dentists at Childrens have taken to his case and are doing a case study to possibly learn more about his special circumstances in hopes that they can help future children.  Just another reason our son is so special and a reason we are so blessed to have him!   I’m sorry I don’t have photos to share with you today, as I am working on my wife’s laptop and don’t have the most updated photos here.  stay tuned I’ll add them tomorrow.