Today is Rare Disease Day.
www.rarediseaseday.us
Mission:
Join the movement today and take action!
On the last day of February each year, the rare disease community comes together to raise awareness and celebrate our shared strength. NORD (National Organization for Rare Disorders) and our partner organizations proudly sponsor U.S. Rare Disease Day.
Some facts from NORD about rare diseases:
• A rare or “orphan” disease affects fewer than 200,000 people in the United States.
• There are more than 6,000 rare diseases.
• Approximately 30 million Americans (about 10%) are affected by a rare disease.
We all come together on Rare Disease Day to:
• Raise awareness about rare disease
• Champion research efforts toward development of new treatments
• Support provision of resources for patients and families
Together we can make a difference.
Alone we are rare. Together we are strong.
Take action Now:
Write Your Governor
http://www.rarediseaseday.us/rdd/take-action/write-your-governor/
Become a Partner
http://rarediseaseday.us/rdd/take-action/become-a-partner/