We will be celebrating Carter’s life on Friday, December 11th @ 11am at Cherry Hills Community Church (www.chcc.org) and would love if everyone could attend. He has touched the lives of so many as many have touched ours as well. A reception with food and drink will follow. Thank you to Justin Spicer of Denver United Church for all that he has done….. www.denverunited.com this will be the best celebration of life ever!
Tiny Angels
Tiny Angels rest your wings
sit with me for awhile.
How I long to hold your hand,
And see your tender smile.
Tiny Angel, look at me,
I want this image clear….
That I will forget your precious face
Is my biggest fear.
Tiny Angel can you tell me,
Why you have gone away?
You weren’t here for very long….
Why is it, you couldn’t stay?
Tiny Angel shook his head,
“These things I do not know….
But I do know that you love me,
And that I love you so”.
I love you Boo so much… my heart aches more and more each day. I wish you were here!
Daddy!
It is with a very sad and heavy heart that I am writing this post to you all today. Last night, around 5:30pm, my little angel “Boo” gained his wings. After a wonderful day of watching the Broncos kick Kansas City’s butt with my little buddy, Carter gave his winning exclamation cheer …”GO Broncos!” its the first time I heard Carter say this and say it so clearly. He too was excited to finally win a game in Kansas City in December. Shortly after the game and after Carter awoke from a little afternoon nap on my chest. We thought it was time for bath time. “Bath”, “Bath” he kept saying, he loved to take a bath and it was the first time I had given him a bath in a long time since I am always working during the weeks. So after his bath we got cuddled up to watch his favorite Little Einsteins… he loved this particular episode… you know the one with Hansel & Gretel? I can hear it right now… “Hansel Gretel don’t you worry, we are coming in a hurry” he loved this episode so much the smile and excitement it brought to him made us laugh so hard! After a few showings of this it was time for bed…. And as I went to put him down to bed…. he looked at me in the eyes and made a large grasp of air and then went limp…. As Deni was calling 911, I was trying to give him CPR, he came to once and I thought I was going to pull him out of what ever was happening to him. Unfortunately what was happening to him was he was getting his calling to move on to do good and care and bring inspiration to a larger audience. His I-Cell disease had weakened his small body, but not his soul, his mind nor his ability to bring so much joy to all that had known him. I might be greedy, but I am having a hard time realizing he is gone and having a real hard time sharing him with all that need him. He was our entire world. We cared for him night and day in return he brought a joy to us that we only wish others could have from their own children. He was a courageous warrior who had strength of a million men and I only hope that in this time I can have a millionth of that strength, as we are now alone, in body, we will forever be bound by spirit. Carter, please know that I will always love you and I can’t wait to meet you in heaven so I can finally hear you tell me that you love me too. You are forever missed.
Carter got a brand new puppy for his 3rd Birthday, which was Halloween. He is a Yorki-poo! Barkley has been really good to Carter and he has been having a fun time with him….here is a little video from his first day with him.
Well, it’s been a while since I have been here and I’m sure most of you have lost interest, thinking I have as well. Well that couldn’t be farther from the truth. The fact is the past few months have been a roller coaster ride of good and bad times. I’ve had so much on my mind I’ve had even a problem putting it down on paper, let alone on the blog. The F**king economy finally made stop here in Denver and all the hard work we put into my job i-amTV came crashing down when the company was acquired by California company, NTN Buzztime, and with a fizzle…i-amTV was no more and so was my job. This was a tough pill to swallow (unlike all the other pills). I found myself with a major confidence issue, not only with myself, but my work experience was all over the place. Where was I going to find a job that with a marketing/media sales background (probably the two worst hit job markets just outside of Real Estate and Car Sales…hmm what to do?) How about I go sell some cars? Thanks to my brother, John, I found myself pimpin new Hondas at one of the best Honda dealerships in Denver, Kuni Honda (www.kuni-honda.com)! And to say the least, I am really digging it. (HERE COMES SHAMELESS PLUG.. .If you know of anyone looking to buy a car, you now have a place to send them or bring yourself!) Of course I started in August, the best month the car industry has had in years and it was great, but with good comes a little bad and like a Kick ass New Year’s Eve party comes one hell of a hang over on New Year’s Day…and that would be the month of September in the car business. But I feel that I have entered a great opportunity in my life to learn something new, get world class sales experience and just work my ass off (60+ hrs a week). So that has been a snapshot of where I have been. How about my little Boo and Deni. Carter and Deni have been loving time together and both have stepped up their game, while I am off at work. I am sad I don’t get to see them both as much as I used to, but in a way I think this new challenge is good for us all. There are going to be struggles, but we continue to forge on, as we must.
Carter has been doing good. He had a little bump in the road that led us to a couple of nights in the hospital (damn colds), but he powered through and so did we, as we must. I am really proud at how he has been getting a little stronger and here is a really fun video of him taking some of his first steps in his walker….
Carter has been such a joy the last couple of weeks. He has been doing a lot of really cool things like impersonations. We find him understanding that if we mimic something enough that he is beginning to understand that he too can make the noise. This is super exciting for us as once again he is continues to show a little glimpse of progress. He had a full Neurophysiology check up on his motor and cognitive skills and of course they weren’t at a typical 2 1/2 year old, but the good news was that he has shown a lot of improvement over the last year since his previous test was done. And that is all we are asking for.
Here is a little video of Carter doing his very funny doggy howl impersonation.
Tomorrow is national MPS Awareness Day and I just wanted you all to take the time, if you haven’t already to visit www.mpssociety.org and learn more about this terrible disease. What a lot of people don’t realize is that MPS is so rare in some cases that some children go undiagnosed and with no cure, it will take funding and knowledge to overcome. We learn somthing new each day and we meet more and more parents that are going through or have gone through similar situation as Carter’s and it breaks our heart, to see these very special kids who have the ability to light up the world with thier smiles, laughter and courage and know that with out our help they and many children in the future won’t stand a chance, because in a way that’s all they want is a chance at a normal life. We love you guys and Carter says hi. Here are some photos of him from the past couple of weeks.
If you read this blog you will know that we have a very special person in our lives by the name of Destiny. She helps us with Carter twice a week and is really just plain and simply AWESOME! Carter absoulutley loves her and so do we. So we were so excited to hear that she was going to partake in the First Ever Love, Hope, Strength Pikes Peak Rocks. What is that you ask… well in a nutshell It a really kick ass charity event to fight cancer and to create more Bone Marrow Donors and they do this through music and mountain climbing. Rock & Roll & Rock Climbing…pretty fucking cool! A
Any way… she needs to raise a $1000 for the event and we are hoping that if you can that maybe you can chip a couple of bucks through her web site all for a great cause. Here is her link where you can learn more about Destiny and her goal http://www.lovehopestrength.org/site/destiny-jara/
Also, you don’t ahve to hike the mountain to be involved you can drive to the top of Pikes Peak and they will have a concert at the end of the trek for more information on the event check this out: www.lovehopestrength.org We are planning on taking the cog train up that day and it will be so much fun, come out and join us!
funny video of Carter who now knows his nose!